The Boy in the Moon

Walker Brown was born with an orphan syndrome, a genetic mutation so rare that only about 300 people in the world have it. Walker turns twelve in 2008, but he weighs only 54 pounds, is still in diapers, can't speak, and must wear special arm cuffs to prevent him from hitting himself. "Sometimes watching him is like looking at the man in the moon – but you know there is actually no man there. But if Walker is so insubstantial, why does he feel so important? What is he trying to show me?" Brown writes in The Boy in the Moon.


Brown sets out to answer that question in a book that owes its origins to Brown's original Globe and Mail series, a journey that takes him into deeply touching and troubling territory. "All I really want to know is what goes on inside his off-shaped head," he writes, "but every time I ask, he somehow persuades me to look into my own.”


Author: Ian Brown

Link to buy: https://www.amazon.ca/dp/0679310096?tag=prhca-20

amazon.com
amazon.com
Writer Ian Brown's son Walker, born with the rare Cardiofaciocutaneous syndrome, has led a life of huge challenges and small triumphs (cbc.ca)
Writer Ian Brown's son Walker, born with the rare Cardiofaciocutaneous syndrome, has led a life of huge challenges and small triumphs (cbc.ca)

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